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Topic: Randy Jr. Healh Update

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All Forums : [General] : Off Topic Forum > Randy Jr. Healh Update
20 AUG 2007 at 6:07pm

Randy-JA

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Not much positive here, so you may not want to read on:

the cancer has gotten larger, so we now have to go to Indianapolis, leaving this Wednesday, to meet with the doctor who treated Lance Armstrong.  

Randy will need to undergo what they are currently describing as extensive chemo treatments.  But first he must have a stem cell removal done as appearantly the new chemo destroys the stem cell.  They are then replaced after the chemo.

That's about all we really know at the moment.  I think I am about emotionally and physically shot after all we have been through the past 5 years, but I'll remain strong for my son and get him through this.

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20 AUG 2007 at 6:33pm

alkis21

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I wish there was something we could say/do to make you feel better, Randy.

Do you like classic adventure games? Check out Diamonds in the Rough!


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20 AUG 2007 at 6:36pm

Terry Penrod

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My heart goes out to you and your family Randy.

Hopefully the treatment in Indianapolis will make a big difference in your son's health and you will have great news to report next time.

Meanwhile, hang in there and take heart in knowing that Lance Armstrong beat this disease and so did you.

Cheers,  Terry

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20 AUG 2007 at 8:24pm

kate

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just keep hope he'll  beat it and you can help him, i will keep him in my prayers, i hope he comes out like you and lance armstrong,


machelle

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20 AUG 2007 at 8:56pm

Val

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Strong good get well thoughts coming your way. Let us know if there is anything at all we can do.

We can be heroes, just for one day.


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20 AUG 2007 at 10:56pm

Andromus

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I'm truly sorry to hear this. I'll be remembering him (and you and your family) in my prayers.


 


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21 AUG 2007 at 12:00am

Helen

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I will also keep your son and family in my prayers.

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21 AUG 2007 at 3:00am

karla

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Randy, I'm so sorry the news couldn't have been better. You, Randy Jr. and the rest of your family remain in my thoughts and prayers. A lot of adventure gamers are pulling for you!

See my portfolio of original artwork at http://home1.gte.net/res0b8zk/portfolio/resources/portfolio.htm

I put my heart and soul into my work, and have lost my mind in the process. - Vincent van Gogh


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21 AUG 2007 at 5:07am

Caroline

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So sorry that your son has to go through this Randy.  I hope the treatment works.   Give him our best wishes.

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21 AUG 2007 at 6:25am

Lucien21

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Best wishes Randy and son. Hope he gets better soon.
Dear Diary, My teenage angst bullsh*t now has a bodycount.

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21 AUG 2007 at 9:51am

Ivinia

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Not sure what I can say here that hasn't already been said. Hoping that things turn out well!!!


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21 AUG 2007 at 9:59am

TC

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I'm sorry to hear about this bad news. It sure makes other problems seem so insignificant.

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21 AUG 2007 at 10:08am
Deleted User[img]http://gallery.zoom.nl/public_images/5453/468/F2LO73.jpg[/img]

21 AUG 2007 at 6:23pm

SirDave

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Randy, here's a direct quote from Lance Armstrong:
'Ask hard questions. Insist on second, third, and fourth opinions. Sometimes the tendency for people in most of their hometowns is to stay there—to go down the street to the corner oncology shop and be content with what they are going to be given. I was diagnosed in a smart city, a big city, a progressive city. But I ended up having to leave Austin and go to Indianapolis to get the right mix of treatment and care. Without that, my life would have been very different. I suspect I would have lived. But, without a change in treatment and a change in protocol, I wouldn’t have raced again…'

This is exactly what you're doing which is the most you could possibly do for your son. Lance had extensive spread and yet, even almost a decade ago they cured him. I'm sure they've learned a lot since then and I think you're in the best possible hands you could possibly be. As well, certain forms of this type of cancer were some of the first ones that was seeing cures going back to the 1970s. There are lots of very good reasons for hope and optimism that good results will occur for your son and all of us are going to keep those positive thoughts for Randy Jr.!

The future ain't what it used to be!


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21 AUG 2007 at 8:40pm
Deleted User~~ Randy & Jnr. ~~

Keeping my fingers tightly crossed.

We have a lot of genetic cancer in our family so I have knowledge of what you're both going through.

We also know of several close cases (not 'celebrities') of complete cures.  I sincerely hope that your son will be another one !  [smiley=thumbup.gif]  [smiley=thumbup.gif]

21 AUG 2007 at 8:55pm

Lady Kestrel

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All my best wishes to Randy, Jr. for a positive outcome with all this.  Please let him know we're all thinking of him.

"Where is the fountain that throws up these flowers in a ceaseless outbreak of ecstasy?"

-Rabindranath Tagore


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28 AUG 2007 at 9:29pm

Inie

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I'm so sorry to hear this news. I wish you and your family all the best and hope this new treatment will help your son beat the cancer.

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31 AUG 2007 at 5:11am

Randy-JA

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where we stand:

Randy is currently in hospital finishing up a week of chemo.

Last week we drove to Indianapolis and met with Dr. Einhorn.  Great doctor and his success rate it 90%, but our insurance company will not approve or pay for treatments in Indy (though I'm sure they would if it was one of their relatives), so Dr. Einhorm will consult with doctor in Pittsburgh for treatments.

Next week we have meeting about stem cell transplants.  These should occur, I think near end of Sept.  Randy will then go into hospital for extensive chemo that is 5x stronger that what he is receiving now.  Two days of chemo and 8 days recuperation.  Possiblity of permanent deafness.  Also very susceptible to any viruses, etc.  Then there is a two week break before the 2nd and last round of treatments begin.  I believe after these that the stem cells are then replaced.  The stem cells must be removed because the chemo destroys them and they are necessary to replace bone marrow, etc.  

Basically, we will be finished with all treatments by last day of Oct.  There's lots I'm leaving out, but just can't remember it all at the moment.

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31 AUG 2007 at 7:53am
Deleted UserI pray for your son, bubbah.




Be strong.

31 AUG 2007 at 12:12pm
Deleted UserWe are thinking of you both and hoping for the very best.

I don't know whether the following will help... but it may (???) be a palliative for your son (or somebody else) !

7 weeks ago, Sylvia's (my wife's) closest niece (Carolyn, aged 61) in London was diagnosed out of the blue with pancreatic cancer.  Her counselor told her that there is a substance produced in Israel only which relieves (at least to some extent) the side effects of chemotherapy.  It is called "Lifemel Honey" and is apparently some sort of special pure honey plus various other important ingredients.

Whether it REALLY helps (or not) I do not know, but if you Google it, I believe it has been scientifically tested at hospitals etc.  I don't guarantee it... but who knows.

We arranged for 2 bottles to be sent to our niece... it is not worth while express airmailing less than 2 bottles at a time.

The only feedback we have had is an email yesterday from Carolyn's husband :-
[size=11]Dear Sylvie & Len,
Carolyn has had a couple of weeks off from the chemo and starts again this week (Thursday) for another 3 sessions. Then 2 weeks off and then, hopefully, the final 3 sessions when a new scan will be taken. The chemo makes her feel nauseous (but she hasn't been sick) and also causes problems with her digestion. It also makes her very tired. Strangely, it also gives her a bigger appetite than usual and she's eating things like bacon and eggs!
She's taking the LifeMel honey twice a day and feels that it does have some benefit as she's had no problems with a dry mouth which is a common side effect.
We'll keep you posted.
Luv Tony.
.......... p.s.   from Carolyn ......... So lovely that you're all thinking of me and rooting for me = I so appreicate it and will call you soon - loads of love to you all xxxxxx

It sells for about US$110 for 2 bottles including packing & express airmailing abroad (4 days from Israel to UK) !
P.S. I get NO commission !!

31 AUG 2007 at 12:53pm

Caroline

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I hope it all goes well for Randy jnr.  This is a harrowing saga from this distance - it must be horrendous for all of you.    I too have heard there is something they can give to alleviate the nausea of chemo but I can't remember what it is.  I do know Daryl had it and it worked for him.

You are all in my thoughts.

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31 AUG 2007 at 4:14pm

kate

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i hope for him to be cancer free by oct. i know how scary it is to have a child sick, you wish it was you and not them, i will have him in my prays randy good luck to your family,


machelle

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1 SEP 2007 at 12:50am

Helen

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Im so utterly disgusted with health insureance, I cannot believe that they wont  cover treatment for him there. Its bad enough going thru such trying times and then to have to worry about that kind of stuff is just shameful. Something really needs to get done in this country about health insurance, I sometimes think it will never get better and find it a very depressing thought.
But Thankfully the Dr. is willing to consult to treat your son and it sounds like Randy Jr. is in good hands.

 Of course its illegal but I know of many people who have gotten relief from chemo by smoking pot. I remember my sister-in-law was helped quite a bit with it and her Dr. at the time even suggested it, that was over 15 years ago.
But I know alot of people who have gone under interferon treatments and alot of them claim its very helpful. Something to consider if it should come to that.
I know it might sound rediculous but I personally believe you do what you have to in order to get thru, illegal or not.

I pray your son does well and has a complete recovery.

Take care, Helen

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1 SEP 2007 at 1:41am

Terry Penrod

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Nothing ridiculous about it Helen and I think the real sin is oppressive, self-righteous government officials, so-called media pundits and ignorant busibodies who have the audacity to poke their long, pointy noses into the private medical affairs of total strangers.

NOT making pot legally available to cancer patients whose own qualified physicians recommend it as badly needed relief from extreme pain and suffering is a cruel, disgusting act. People like that need to be introduced to real anguish. If so, they would get over their prudishly pushy, pinch-brained, megalomaniacal moralizing fast.

Cheers,  Terry

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1 SEP 2007 at 3:27am

Caroline

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Gee Terry, I wish you'd stop sitting on the fence with this one....  




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